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Sunday, January 26, 2014

The Trouble With Toast

Serving Mommy a Snack with Pretend Food
Between RSV season and the new 1pm church start time for the three hour block, we've been taking the whole family to sacrament meeting but afterwards taking Audrey home for nap instead of nursery. She really, REALLY wants to go to class, both she and Gideon do, and they always cry when they aren't allowed to go, it's so adorable! So we relented last week and let Gideon start attending his class again, against my protective instincts, but I'm holding firm on my feeling that baby girl needs to avoid nursery for now. Today it was my turn to take Audrey home for nap, and I gave her a little snack before sleep, some bread cut into the shape of a kitty cat (which had been cut out of a slice of toast by her big sister and brothers who fixed everyone eggs cooked into toast slices this morning). After she enjoyed her kitty snack, she drank some water and to my chagrin, the bread all came back out. I don't know what to think. I don't know if this is just our new normal and we will just always be dealing with this, or if there is a problem that needs Dr Skarda's attention. We've been through this very recently, just a couple weeks ago, and no stricture was found after a traumatic attempt at getting her to swallow barium for a picture of what's going on. Sigh. On my way to prepare milk for her g-tube because she's still asking for food. Sometimes I just feel so blind about how to help this sweet little girl.

Thursday, January 2, 2014

Esophagram

No stricture! No stricture! Took Audrey in for an esophagram this morning, which took hours longer than it should have and she was super grumpy from fasting and wanting her nap and being too scared to drink the barium,but it was all worth it, there was no stricture which means no surgery tomorrow! She and I brought home celebratory pizza for everyone.