2014
5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Wednesday, December 31, 2014
Wednesday, December 24, 2014
December 24 trip to the Children's Museum
Tuesday, December 9, 2014
Sad Day
One of Audrey's namesakes, my precious friend Anna, needs prayers for strength and comfort to her family as she wraps up her valiant battle with this disease I detest. I can't begin to tell you how much I love and admire this woman. Her example of Christlike service to her family and everyone she knows, her laughter and joy and ceaseless hard work, have all touched my life immeasurably. I'm thankful for a deep belief that life does not end when our bodies quit working, that the Lord is bigger than all of our griefs, and that He knows exactly how to comfort us when we turn to him.
Thursday, December 4, 2014
December Blessings
So much on my mind, more than I can share! I'm celebrating and mourning with close friends in a strong juxtaposition of emotion this week. Glad I could sing some of it out last night in the concert. Heartfelt thanks to those who've done incredibly kind things for me the past few days. Urgent prayers for those who are hurting. Tears of joy for those who are in a place of relief today. You know who you are.
Justin and I have some miraculous news that I hope will lift spirits. Audrey has inexplicably shown dramatic improvement over the past couple of weeks. She's suddenly been able to swallow things she's never been able to before, like Mandarin orange sections, without getting them stuck in her throat. She weathered a cold and a stomach virus like a champ. She ate an entire half grilled cheese sandwich last week! She had a healthy toddler-size Thanksgiving dinner without coughing and regurgitating, only complaining a little of discomfort. This is huge, you guys. HUGE. No pneumonia. Minimal reflux. I'm afraid to say it out loud lest we jinx it! Deep breath. We are very seriously considering delaying her surgery, possibly just scoping to check the status of the hole in her esophagus next month instead of staying for major surgery in Boston. Waiting to hear back from Dr Jennings. Stay tuned.
Justin and I have some miraculous news that I hope will lift spirits. Audrey has inexplicably shown dramatic improvement over the past couple of weeks. She's suddenly been able to swallow things she's never been able to before, like Mandarin orange sections, without getting them stuck in her throat. She weathered a cold and a stomach virus like a champ. She ate an entire half grilled cheese sandwich last week! She had a healthy toddler-size Thanksgiving dinner without coughing and regurgitating, only complaining a little of discomfort. This is huge, you guys. HUGE. No pneumonia. Minimal reflux. I'm afraid to say it out loud lest we jinx it! Deep breath. We are very seriously considering delaying her surgery, possibly just scoping to check the status of the hole in her esophagus next month instead of staying for major surgery in Boston. Waiting to hear back from Dr Jennings. Stay tuned.
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