5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Flutter By
Friday, October 28, 2011
First Dilation
She's such a trooper. The surgeon made progress. She'll be back in for more next week, and each week after that for at least four or five times he said, and he said to expect it to close in again in the future. But for now, we have come up from a very miniscule hole to about a quarter inch opening, which is wonderful! Post surgery, she had to wear arm restraints and she was panicked because when she came out of surgery she couldn't bend her arms... it was sad to watch. Plus the IV in her foot was hurting and there was a board on it preventing her from bending her foot, and into her nose and out her belly, taped all over her body is a funny looking string, looks like dental floss, that the surgeon left in as a guide for the next dilations. Not sure how long she'll need to wear it, but it looks sooo uncomfortable. Tylenol, rest, and she is back to smiles, but poor baby! I'm supposed to have her wear the arm restraints at night and any time I'm not right with her, to keep her from pulling on the string. Even though it's taped down, it is suture thread, sharp compared with skin and could injure her if she pulled it against her little nostril. Do I have the guts to put those things back on her? She was terrified and flailing at the hospital, as she came out of anesthesia.
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You will do what is best for her because you are her mom and you love her. You can do it. Can't wait to finally meet her when I get back.
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