So there you have it.
She loves helping me give her medicine through her G-tube, and opening and shutting her little second "belly button" when it's time. She's been having a pretty rough time eating by mouth the past couple weeks, getting lots of food stuck in her throat sometimes. When it comes back she says "Sorry Mommy" and looks so chagrined, but we reassure her that it isn't her fault and remind her to take little bites and chew lots. At other times she does OK, and we don't know why. All of the recent tests have shown her esophagus is open, but the lack of normal muscle action in there may simply be the cause of her difficulty eating, and a problem we'll have to deal with as a part of her normal life. Justin told me yesterday that he has noticed a difference when we pray specifically for her to have help swallowing, during grace for that meal. We've gone back to nightly G tube feeds and she is probably getting at least half of her daily food at night again. It has been a quiet stress. I've been doing a lot of the Good Mom/Bad Mom routine with the older kids--you didn't even know that was a thing, right? Yeah baby, I'm owning it. With such a nice dad around, somebody has to keep them in line.
But I just received a BIG surprise--someone nominated our family for free tickets to the Comic Con Fan Xperience this Thursday, and we were among the ones chosen! I am so excited to take the kids and Justin to this fun event! The kids don't know yet. What a treat. Thank you to the friends who nominated us and to Nick at Salt Lake Comic Con for this generous gift! We'll be excited to see actors and props from a lot of our favorite geeky fandoms, like Star Wars, Dr Who, and Star Trek the Next Generation. There's an entire tent just dedicated to kid stuff and I imagine a big chunk of our time will be there too. Fun times.
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