5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Flutter By
Monday, August 10, 2015
Two New Fistulas
Audrey's esophagus as lit by barium. You can see the connection point, the shelf where food gets stuck, the changes in direction, and that subtle black webbing on the left side is where her fistulas were passing barium into the lungs in response to Dr Manfredi squirting barium directly into them. 3 days later, she's still finishing coughing out that stuff. We need to know if food and drink are quietly causing her lung damage over time, or if the fistulas are remaining closed when she eats. That will determine the urgency for the resection surgery, whether we need to do it as soon as possible or can wait until June like I'd prefer due to my responsibilities at home.
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