She's home with the sniffles today, so extra snuggles and play time are in order. Audrey says Cosmo wanted to go to the ball but then he found out only girls were allowed, so he went in disguise. Silly Cosmo!
Although Cosmo discovered that there are no footballs at royal balls, Audrey did discover that the word B-A-L-L is found inside the names of many sports. She practiced her letters and sounds today with me playing a cute Cosmo version of hangman on the website CosmoCougar.com. She also learned her vowels, which letters are most common in English words, and which letter always comes after an apostrophe.
There's a saying among special needs parents, that with our kids, a cold is not just a cold, the sniffles are not just the sniffles. So many of us have seen what is "just a cold" turn into hospitalizations and worse. We've been there and done that too, so it is with no small humility I say: What you see is a little girl with actual normal little sniffles. And this, friends, is huge.
She has had the healthiest winter EVER so far. She even weathered a one day stomach virus at Disney over winter break when we traveled to Orlando for the first time thanks to a very special gift, spent just one day with extra fatigue and needing a stroller, heaving up saliva once in a while for a couple hours but nothing much beyond what other kids deal with. Don't worry, we took it very easy that day and were careful not to expose others. With a large family and traveling with extended family sometimes we have to adapt when things are less than ideal, and she was a sweetheart and mostly watched things from her stroller that day snuggling with her blankie or in our arms. And then after an early night's sleep she got her energy back, moved on with the vacation and had a marvelous time. It's the first time we've gone on a long airplane trip without bringing a stroller, and her strength and sparkling energy were absolutely inspiring to me. Without her recent surgery, particularly the posterior tracheopexy and the work on her lungs, we'd probably be singing a different song. Feeling thankful in innumerable ways.
All set for their surprise morning flight to Disneyworld!
On the shuttle to head back for a break and go swimming!
There's a saying among special needs parents, that with our kids, a cold is not just a cold, the sniffles are not just the sniffles. So many of us have seen what is "just a cold" turn into hospitalizations and worse. We've been there and done that too, so it is with no small humility I say: What you see is a little girl with actual normal little sniffles. And this, friends, is huge.
She has had the healthiest winter EVER so far. She even weathered a one day stomach virus at Disney over winter break when we traveled to Orlando for the first time thanks to a very special gift, spent just one day with extra fatigue and needing a stroller, heaving up saliva once in a while for a couple hours but nothing much beyond what other kids deal with. Don't worry, we took it very easy that day and were careful not to expose others. With a large family and traveling with extended family sometimes we have to adapt when things are less than ideal, and she was a sweetheart and mostly watched things from her stroller that day snuggling with her blankie or in our arms. And then after an early night's sleep she got her energy back, moved on with the vacation and had a marvelous time. It's the first time we've gone on a long airplane trip without bringing a stroller, and her strength and sparkling energy were absolutely inspiring to me. Without her recent surgery, particularly the posterior tracheopexy and the work on her lungs, we'd probably be singing a different song. Feeling thankful in innumerable ways.
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| Having a blast in bustling Hogsmeade at Universal Studios |
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| I've always wanted to see this lit up for Christmas. It was just as magical as I'd imagined. |
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| Ready to ride the Hogwarts Express! |
All set for their surprise morning flight to Disneyworld!
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| Annnnnnnnd back to reality. But full of cozy memories! |
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