5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Flutter By
Wednesday, August 29, 2012
She Wants Daddy Back, but Sunlight and Hugs Help in the Meantime
She has finally turned the corner so I can
share how worried I've been; the past two days Audrey has been
depressed! Even though she has been getting so much better, lost her
chest tube and even her oxygen support, she just had no interest in
anything. Not reaching for things, not smiling or talking or even
reacting to people or toys, completely apathetic except to cry in worry
every time a nurse approached. I was
getting really worried and exhausted with the stress of trying to help
her be happy. And then, today like magic, she turned the corner a
little after I took her outdoors for the first time since surgery.
There is a garden courtyard in the center of the hospital with a lovely
space of grass and there was a lunchtime jazz concert today. I took her
to it and she just stared around without smiling or reacting, but I
know it did a lot of good for her. When I brought her back up we
snuggled for a while, and after a short nap she started showing interest
in toys and mischief again. At one point, she even said "ducky." But
by far best of all, she started giggling again! She must have giggled
twenty times while playing (for he first real time) with her toys and
balloon. Best sound ever!
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