She is being given more milk! The amount had stalled while we were sorting things out with surgeons. Dr Downey indicated in our talk that he wasn't worried about the surgical site any more at this point, and hinted he might even go up to full milk feeds for her. Waiting to see, but this is a BIG BIG DEAL!!!
She smiled in response to my playing with her, and also to my voice!
She seemed uncomfortable today. Tried some non-nutritive feeding for the first time in a few days. She rooted but then gagged the instant it passed her lips, so she took a comforting skin to skin nap instead.
OT reports also that she is gagging on the pacifier and on their gentle finger in her mouth. This is a setback. Could possibly be related to headcold/pneumonia, or to new tube (nasal cannula), hard to say. Patience, diligence, then patience some more.
Reading Sawyer's blog-- imagining once we're home: practicing nursing, then attempting bottle feed, then using G-tube, then pumping, every. three. hours. And mothering a toddler in between. Yikes.
5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
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