Monday, June 18
Room service just came in asking what Audrey would like to eat. I was
polite in explaining her situation and that a mistake must have been
made in this morning's orders. I guess one of her cute caregivers must
have thought this poor kid deserves a steak!! (So funny. But I want to
let out a barbarian warcry!) This morning's test of her esophagus
seemed to show big improvement, but you know it probably means another
week stuck here till it closes up. She is fine in every other respect,
but still not allowed to eat and her picc line nutrition is not a good
thing to bring home to my busy household. We'll see what surgery team
says. I am so, so frustrated. WE WANNA GO HOME!!
4 p.m:
Wonderful news, we get to try her G-tube again tonight!!! Only ten ml
per hour, so it's only a drop, but it's a place to start! I am soooo
excited!!! They are really concerned about protecting her esophagus
from food in order to allow that leak to finish healing, so we are
starting with continuous feeds at a suuuuper slow rate, but we will
increase it gradually over the next few days as she tolerates it; the
day before this started she was at 240 ml per hour for half hour
increments four times a day (basically like a regular baby drinking four
8-oz bottles a day), so it will take a while to get there again, but
hoo to the ray, we are FINALLY approved for some kind of FOOD again!!
No comments:
Post a Comment