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| Audrey is asking for a rest on my lap. Peyton is asking for a rest on my shoe. I feel loved. |
5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Wednesday, June 13, 2012
Wednesday, June 13
So happy to have spent a wonderful relaxing lunch and conversation with friends
today. Baby girl also had a fun visit from "pet therapy" and got to
pet a giant fluffy Bernese Shepherd! Also a wagon ride and fell to
sleep playing with her cute soft owl, a gift from my wonderful nurse who was there when Audrey was born. Also loving the treats from other dear friends. What started out very stressful turned
into a great day, thank you for so many kindnesses! Audrey will have
another surgery on Thursday. They will sedate her and use an ultrasound
to guide a needle to relieve some fluid still pressing on her right
lung, that was not relieved by her chest tubes. We are down to just
Tylenol for pain; I think today was the first day with no morphine!
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