5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Flutter By
Tuesday, December 18, 2012
Another Dilation, and Breakfast with Santa
Sitting anxiously in the surgical family waiting room. Again. More anxious than usual today, fearful she will tear, packed an overnight bag just in case. Not even hoping anymore that she stayed open. Glad we slipped through the cracks last week with no procedure, needed that happy break. Had an incredible weekend, with one wonderful humbling adventure after another. Our neighbors here, a retired policeman and his sweet wife, invited us to attend the breakfast with Santa for the police department member families Saturday morning. Santa had a gift for each of our children, then the chiefs pulled us aside and presented us with a financial gift to help our family with Christmas. Tough to talk about, but I think everyone needs some happy news. We are so blessed with friends old and new. Please pass the kleenex.
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4pm
She's out, looks like we will get to go home tonight after all. Only constricted roughly 3mm in 2 weeks. He made some cuts in there to encourage a good kind of tear, and injected steroids into the stricture, will try again in two weeks.
In another one of our adventures from this weekend, we attended the "Dressing of the Trees" at Plimoth Plantation, a wonderful event for kids and adults alike where we learned about the historic mid-winter and Christmas traditions that would have been celebrated in the 1700s, both from the perspective of European settlers and Native Americans. We participated in a beautiful Native American service where the four winds are individual called upon to help carry our prayers to the Great Spirit, during which we helped place colorful ribbons on a tree that were representative of the four directions and their individual qualities. We then made beautiful little handmade lanterns and carried them to go wassailing at a 17th century home before hanging them on a tree in a beautiful European tradition that led to the Christmas trees we know today.
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