Some pretty important news on Audrey this
morning. She had a biopsy of the tissue in her lower esophagus to check
for signs of acid reflux, to check to see if acid was the reason for
her stricturing. The biopsy came back normal, giving lots of weight to
the doctor's opinion that it is not the cause, and that she might need
another resection to stop the madness. (Yes, please stop the madness!
Wait, no surgery. Give me an
aaaaarrrh!!)
Because of scheduling conflicts, they won't be doing
another dilation until next week-- they told me January 8th, but I'll be
driving the family to LaGuardia airport that day, so it will be even later.
This will be the longest stretch between dilations, it's going to be
interesting to see what happens. Thanks for caring. Love ya all!
In
a twisted way maybe, it's sort of a relief. I mean, we needed to
know, and I was scared to death to get a Nissen fundoplication, it just felt like it wasn't
right, but not sure, you know?
Even if the team decides she needs a second resection, we
are probably going to find a way to hobble our way through another
year. We're not ready for another major surgery. We'll give her time to grow
and stuff and schedule it when it feels right. It would take a
compelling argument to change our minds on that.
5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
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