5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Flutter By
Monday, May 27, 2013
Love Will Steer the Stars
Yesterday
rocked. 12-year-old Eden gave her first talk at church, and did an
awesome job. She had written the whole thing herself, spending eight
hours to write a beautiful eight minute talk about covenants; the great
victory in this is that she finished it mostly without nagging, while
battling her huge struggles with ADD, so maybe two thirds of that time
was spent staring into space. She also overcame
intense shyness and spoke up even though it was her first time at the
pulpit in front of the entire adult congregation. We are so proud of
her. The babies also made a mark in our family history book in another
way. On Saturday I'd brought Gideon a cute pair of bright red Angry
Birds crocs. He loved them so much that he wanted to wear them to
church, with his little formal black suit, to which we said no. Justin
and I were busy getting the final things ready, turned to leave and
couldn't find the babies. Anywhere. We were getting very worried but
since Eden had to be on time to give her talk Justin sent me ahead with
the older kids and kept looking for the little ones. I walked the two
blocks to our chapel only to find Gideon and Audrey sitting down prim
and proper in the front pew. That funny clever 3 year old had figured
out how to get away with wearing the angry bird shoes to church! I can
just see him grabbing Audrey's hand and saying "come on Audrey, let's go
church" and toddling on their merry way, alone the two blocks and
crossing the parking lot. Thank heaven they were safe! Thank you to our young friend Andrea S. for noticing they were alone and going to sit with them until we
arrived! We were so relieved that I even forgot to correct him; so I
guess you'd call that a clean getaway. Then in the evening we had an
impromptu visit from Justin's sister and her family who live an hour
away; we visited the cemetery together to pay our respects to his
grandfather and to our friend Mae Roberts who had devoted her life to
helping raise funds through collecting people's discarded soda cans to
recycle for Primary Children's Medical Center,
with her bent back and sore neck she pulled her wagon ten miles a week
and in that way raised over a thousand dollars a year for the hospital,
on top of this she also walked or hitchhiked to worship at the temple
every morning before it was light; she passed away just before Audrey
was born and our own journey with Primary began. This was one of my
first times joining Carmen and Jared for their annual tradition to visit
graves, and it was pretty moving to see how busy the cemetery was,
literally packed with happy visitors putting flowers on graves and
remembering their loved ones. The atmosphere was like a big celebration
of life and gratitude for our ancestors--I saw one woman's grave from
the early 1900s buried next to her seven babies, all died the year they
were born except one who lived one year. It's remarkable how the depth
and breadth of the stories contained in a cemetery can cause you to
re-center on the most important things, simultaneously reflecting on
the past, being more intensely grateful for blessings in the present,
and planning for the future. We had so much fun afterward eating
homemade scones with Justin's sister and her family that I forgot all about looking at the night sky after sunset to
see the dawning of the Age of Aquarius (in case you missed it too,
Jupiter Mars and Venus supposedly formed a bright triangle in the sky
just after sunset). Crud. Maybe the planets could arrange a bonus
performance tonight? But either way, I guess even the planets agreed
that yesterday was pretty epic.
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