Today we had a morning
appointment at home with the Early Intervention PT and Dietition. (We are working on improving on Audrey's swallowing disfunction, because she probably aspirates a little when she swallows and isn't eating or drinking enough to reduce her G-tube feeds like we've been hoping. She is officially underweight so we will be working on pushing the cheese and high protein snacks.) I waved
good bye to them, grabbed the mail at our box and told Audrey "It's
blankie time!" And suddenly that funny girl started walking away from me as
fast as her little legs could go! She did not STOP until we had walked a
quarter mile around the neighborhood! In bare feet! Funniest walk
ever. I just walked patiently behind her since trying to carry her
unwillingly was a joke. Every time she started to slow down I'd repeat,
"Audrey, it's blankie time." And she'd speed up those tiny legs!! My
life is really fun. An uncommon flavor of fun perhaps, but way, way fun.
Perhaps she figures that after so much time spent in the hospital and doctor's offices, the day is too short to waste napping. I think that's why I just couldn't be impatient with it, and just followed her on her little adventure instead. Carpe Diem, Audrey girl!
5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
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