5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Friday, October 17, 2014
Dancing Dreams
3-year-old Audrey has grown a new connection between her esophagus and lungs, and we are flying to Boston to have it fixed in mid January. This will be her second resection, and her fourth major surgery. Feeding by mouth is still going pretty badly--she regurgitates a lot of what she swallows. So, we're back to about 85% G tube dependence right now. But she's growing and happy and makes us laugh every day. Here is a photo we caught when we went in to hook up her feeding tube last night. I think she looks like she's dreaming of dancing, like a ballerina who fell asleep mid-leap! I hope someday she does run and dance for pure joy. Right now she gets tired easily and has a kind of funny gait, so I am worried we need to get an MRI to check her for a tethered spinal cord. We plan to add that to the list of tests they'll do in Boston before the big surgery on her esophagus in January. It's a beautiful autumn day in Utah today!
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