5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Wednesday, October 29, 2014
Sick Miss
Little princess is miserable with a cold and watching movies this morning. I hope she gets feeling better quickly to enjoy the holiday fun! I'm grateful she hasn't been sick yet this season before now. She always seems to come down with everything so much worse than the rest of the family, and for some reason her digestion slows way down and we have to turn her feeding pump rate down to a crawl or she sputters and cries and refluxes terribly. Trying a new med prescribed by her new GI for times like these, (Dr H said we should always have this on our shelf for her--Cyproheptadine), and hoping she can handle a higher rate than last night.
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