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Tuesday, December 25, 2012

Christmas in Massachusetts

We visited "The Breakers" mansion in Newport, Rhode Island, on the afternoon of Christmas Eve to see their magical decorations. This was the summer cottage of Cornelius Vanderbilt II and their large family of many children; I point that out because I think it's very charming that they encourage children to come visit this incredible museum-like mansion, a palace really. In one of the historical narrations they explain that the Vanderbilt children and their friends were sometimes even permitted to slide down the banister on the staircase! Perhaps differently from what one might expect, visiting these mansions I got a strong sense that this was in large measure a wonderful, wholesome place where children and families were considered of paramount importance. 


Facebook post from December 25:

Merry Christmas everyone! We are SO, SO thankful for you, our friends and family far and near!!! We hope your day has been filled with love. Our sweet next door neighbor brought us an entire ham this morning, hot and ready with pineapple rings on top, and Nascar hats for the children. Audrey's new dolly realistically "drinks" from a bottle and sleeps and giggles; between the two babies they have not stopped playing with the doll all day. Gideon's fire engine is a "shake and go" Mater, adorable. They take turns wanting each other's toys, and the other children all loved their craft, toy, clothing item, and books.  I had simplified our gifts to just one of each of those items, and it turned out perfectly.  Everyone had just the right amount of everything today, and our cup is still overflowing with blessings!


Our homemade Christmas decorations turned out very sweet, with paper chains and snowflakes made from paper that Justin no longer needed from his work files.  Aaron John even made us a star for the top that he colored and cut out himself.

Audrey was so anxious to try one of those delicious smelling Christmas tangerines!  She loved chewing on the segments, even though she needed to spit them out after sucking out the juice because they couldn't quite get down her throat.  She still enjoyed them very much!


Opening their Christmas Eve pajamas


Christmas Eve Storytime

Santa Claus found us in Massachusetts!

The children made their own makeshift stockings out of paper lunch sacks

Audrey cooked us Christmas morning eggs to go with the beautiful ham our neighbor brought us!
 

Gideon was so excited to get his shirt with the Edgartown fire truck on it!

A special gift from her big brother, that he bought with his own chore money


 Audrey was immediately in love with her Christmas doll!


 
Gideon loved that baby just as much as she did!  He fed her and tucked her into bed with his own special blanket.


We also visited the ocean and the home of a man who had decorated his acre of land with an awe-inspiring light display.  These were all special and wonderful activities together, but I confess that the anchoring experience for me was the day this week when we visited our friends who are spending Christmas in the hospital or in the Yawkey Family Inn near the hospital because their children need to stay so near that they cannot leave.  I wanted so badly to bring them to the ocean to visit us at this beautiful home, and instead we brought them cookies and the warmth of our family's affection.  Of all the incredible families we have met and grown to love in this adventure, there are a couple of families in particular who have earned through their exceptional challenges an especially close place in our hearts and daily prayers, and spending time with these three that we managed to visit this week was the crown on my personal Christmas.

Tuesday, December 18, 2012

Another Dilation, and Breakfast with Santa


Sitting anxiously in the surgical family waiting room. Again. More anxious than usual today, fearful she will tear, packed an overnight bag just in case. Not even hoping anymore that she stayed open. Glad we slipped through the cracks last week with no procedure, needed that happy break. Had an incredible weekend, with one wonderful humbling adventure after another. Our neighbors here, a retired policeman and his sweet wife, invited us to attend the breakfast with Santa for the police department member families Saturday morning. Santa had a gift for each of our children, then the chiefs pulled us aside and presented us with a financial gift to help our family with Christmas. Tough to talk about, but I think everyone needs some happy news. We are so blessed with friends old and new. Please pass the kleenex.








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4pm

She's out, looks like we will get to go home tonight after all. Only constricted roughly 3mm in 2 weeks. He made some cuts in there to encourage a good kind of tear, and injected steroids into the stricture, will try again in two weeks.

In another one of our adventures from this weekend, we attended the "Dressing of the Trees" at Plimoth Plantation, a wonderful event for kids and adults alike where we learned about the historic mid-winter and Christmas traditions that would have been celebrated in the 1700s, both from the perspective of European settlers and Native Americans.  We participated in a beautiful Native American service where the four winds are individual called upon to help carry our prayers to the Great Spirit, during which we helped place colorful ribbons on a tree that were representative of the four directions and their individual qualities.  We then made beautiful little handmade lanterns and carried them to go wassailing at a 17th century home before hanging them on a tree in a beautiful European tradition that led to the Christmas trees we know today.  






  

Monday, December 10, 2012

PIZZA!!!!

This was such a quiet success story, crammed in the midst of so much other activity, but it brought me so much joy that I HAD to share with you.  These are some photos we took of Audrey's first successful bites of pizza, soon after a dilation so her throat was open enough to pass the bites she was still learning to chew.  As you can see on her face, it was a slam-dunk victory!  























Well in my opinion, that was one little finish line, FOH SHO!!!!!!