5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Tuesday, August 28, 2012
Good Bye to Daddy
Chest tube drain is OUT!!! I'm
told those things are so painful, man, this is a really big deal. She's
down to only a 1/2 liter of oxygen also, so she's basically off of
everything, and it hasn't even been a week since surgery! They are
still beating on her chest and deep suctioning her airways a couple of
times a day to break up congestion, and that is very upsetting to her,
so she's keeping her mouth closed all the time right now (a resurgence of her old oral aversion). But Justin is
getting to cuddle and hold her right now, so she's venting all
her frustrations to Daddy. He heads to the airport in about an hour.
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