5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Flutter By
Sunday, August 19, 2012
Safe In Boston
We are safe in Boston after a crazy travel day!
Loving the sweet people here at the Yawkey Family Inn (similar to Ronald
McDonald House, temporary low-rent in a shared home for families of patients). Thinking of all the things I did not get done but
wanted to
in the crazy days of this week. Thank you also to my dear friend L for adopting my children for the ten days before Justin gets home,
especially little G who has been having a lot of separation anxiety
and tried to hug the computer screen tonight when he saw my face on the
video call. I'll be home around Thanksgiving, I hope. I'm going to
miss autumn in Utah, it's my favorite time of year. But I just keep
reminding myself, despite everything, this is going to be a grand
adventure. There
are some legendary things like New England autumns and fireflies that
have been a part of my standing bucket list, you know? My heart races
to think of all the adventures that could be had, and I hope Audrey does
well so that she and the other kids can be able to enjoy many of them
together with me. Today we got really excited following along the map
from what we could see from the airplane, as we flew over Lake Michigan
and many other major landmarks of our country, and one of the coolest
things-- we saw both Niagara Falls (very recognizable by its bright
white mist) and
Palmyra from the air!!!!! I hope it works out to see those things up
close, but a little part of me feels like I have truly lived, since I
got to see them at least from that vantage point!!! Especially going to enjoy sharing a few of the Boston sights with my husband for the days he is with Audrey and I. He'll head home a couple of days after Wednesday's surgery.
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