The esophagram was much less traumatic than I had expected, largely because I got lucky and had a radiologist who decided to use air in the throat (used her existing Replogle to puff air into her pouch, ingenious!) which would apparently show up on the x-ray just fine, instead of liquid contrast. Also, the barium in her stomach was far more diluted than I had expected, looked basically like water they were injecting into her G-tube. She nearly slept through her whole field trip-- her biggest complaint was being woken up and undressed.
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| Heading out the door on her "field trip" for her first esophagram-- checking for progress in her esophagus! |
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| Our
fantastic nurse Lisa, as we wait for the esophagram. The x-ray machine is behind
her. Audrey slept through the whole ride through the halls, down the
elevator, and only woke up once we undressed her for the x-ray. |
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| Still sound asleep, just beginning to stir. I love that our lead coats were superhero colors. |
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| *strrrretttch* hey, this bed is too hard. |
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| .....Much better. "This bed is jusssst right." Back in the room after the esophagram, watching her waterfall crib soother. |
Waited all day for the results and never heard, so contacted them ourselves in the evening and found out (through a chain of three middle people between me and the surgeon) that her gap is now 3.2cm (unstretched), versus 4cm stretched before, meaning stretched during surgery to try to connect the two pieces, so our gap to bridge is probably somewhere in the 2cm range now, meaning about two more months of growing. We don't want a tight connection if we can avoid it, so a brief message from surgery saying they will probably do her surgery in early July really shocked and worried us. I'm surprised at the poor communication-- I never heard from them directly, still haven't as of Sunday at this writing, and have had to seek them out and track down info at every turn, and have now requested a sit down chat with our surgeon again, hopefully to get on the same page and learn what they're thinking.
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