Our meeting with Dr Downey started out flat, then grew much more relaxed and fluid about halfway through. We are happy with the ideas he expressed about the care of her condition.
We did a fast photo session for baby announcements-- Yvonne was here, and conditions were perfect so... FAST. "Pull the tubes, and bring on the FROO!" We got five minutes without tubes on her face, and you never heard the camera shutter fly so fast! We got only tiny smiles here and there but she seemed to enjoy herself very much, which was only natural: no tubes, both parents AND Yvonne giving her lots of cutesy attention, fuzzy blankets and of course, lots and LOTS of pink! Some people would say we should just have taken the photos with the tube in, but I have to level with you. It was more than a little special to have my baby virtually tube free for a few minutes, it was exhilarating. I look at these photos and I see a moment of triumphant defiance in the face of adversity, and a promise of better days to come.
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| This was a moment of happy excitement, as if she was saying, "We can do this!!" |
At long last, and to my great surprise, who should show up at the bedside but the music therapist! YAY!! Audrey was tired and starting to fall asleep, but Carissa played while I sang Teddy Bear's Picnic and a 12-verse version of Twinkle Twinkle Little Star. I'd never seen the children's book with the extra verses before, and choked up on one of the last verses, something about "time to bring you home, thank you for this magic ride." It really had been a magical day.
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| And Voila! |
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