Her little hand's swelling has definitely gone way down. Looks hopeful that we can avoid skin grafting, and that it will heal on its own over time.
The Replogle is moved to her nose successfully, but insertion is obviously pretty painful for her. :( Once she gets it in, though, it is obviously a pleasure to her to have her mouth free. We are so fortunate to have the nurse today who is the primary nurse for the other little boy with EA, so she has been inserting these in his nose for four months now and really knows her stuff.
5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
No comments:
Post a Comment