We see her hand wound for first time... woah. It is really big, about 1.3 inches around on the back of her hand, a deep purple blister that has "popped" and revealed the tender deep layers beneath--and everyone keeps telling us it looks a ton better than it did a few days ago.
Susie is gaining confidence w/ working around her mess of tubes and wires-- commonly called the "spaghetti bowl", especially with clearing blocks in the Replogle tube.
Audrey gets her first taste of breastmilk by mouth, on her pacifier. :) The only other thing she's ever tasted is a little bit of Sweet Ease (sucrose) and the occasional minty water on a mouth sponge used for swabbing.
Justin comes up in afternoon to try remote work for a couple of days.
Susie uses a laptop to Skype with the kids so they can see Audrey, who is now opening her eyes more often and showing some personality! Also worked for a couple of hours via Skype with E on a 4th grade school report about Rosa Parks, as quietly as possible with interruptions on both sides, much to the amusement of the nurses.
5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
No comments:
Post a Comment