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Wednesday, September 12, 2012

Busting us out of the Clink

Eeeee! She took one small step today! Feeding team took away their approval for the chopped strawberries when they watched how she was handling them, darn it, but it's just a matter of time before she figures out the chew THEN swallow thing. But we are still on a big upward swing. They're running out of reasons to keep us before next week's dilation, and basically gave me the option of going and coming back-- I was torn, because here we kind of have a little easier time getting her food and nutrition support, and logistic wise it's definitely simpler. But we are sharing a room most of the time with post-surgery babies so it isn't always the best sleep environment.  We compromised to be discharged on the 14th and return for her first dilation next week.  Thank you to our new friends Lexi and Abby for all of your help bustin' us out!

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Lexi keeps an amazing blog at www.MostlyTrueStuff.com, about life with her busy household of four children, one of which lives with Autism and one (darling Abby above) with Down syndrome.  What a fabulous mom and person she is.  We are so blessed to have met her through a mutual friend.  She drove a lot of hours to help us out today, thank you Lexi!




As we were packing up to go, the clowns stopped by our room (for the first time all month!) to blow bubbles and sing silly songs.






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