We had a bedside scope today by the ENT team
and.... drumroll.... Audrey's vocal chords are now working perfectly!
This means she can protect her airways while she swallows. She guzzled
two ounces of apple juice, almost completely without coughing! Our next esophagram is
Thursday, then hopefully approval for..... food. And the next round
begins. The child life specialist also surprised me this morning by
arranging a free chair massage for me; it
was heavenly. Ended the day with a happy visit to Bath and Body Works
to use a coupon, with another EA mom who has become a dear friend.
But the best news of all, we finally have definite plans for my
children and husband to come to Boston! As in, tickets and everything!
That's one paragraph that spells massive stress relief for this mama.
5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
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