After a fun Skype with siblings and my parents
this morning plus her first visit from the hospital dog, Audrey is
napping ahead of another uncomfortable esophagram. They need to find
out if her throat has a leak or not, so they can hopefully begin giving
her tube feeds instead of intravenous nutrition. Although she's had
them many times before, for a number of reasons last week's esophagram
was pure torture for her.... so we're praying for a better experience
today.
*****************
Later:
No
leak!!!!!!! :) Swallow study tomorrow. Better experience today, very
compassionate helpers working hard to help her feel empowered and
comfortable every step of the process.
5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
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