5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Tuesday, November 27, 2012
Reversal
Late last night I got a call from Justin: Audrey's stent removal has been
moved up to today at 11:30a.m. Apparently after
consulting with the EA team, Dr Manfredi changed his mind about leaving
the stent in. After removal, he will coat the troubled area with a
topical steroid to discourage scarring and do some scope work, and the
entire procedure will take 2 or 3 hours. We don't know what to expect
post surgery in terms of her comfort, and we are also in the dark about
her chances for success with this, but Justin said he is planning to
resume weekly dilations/scopes afterward.
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