5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Flutter By
Saturday, September 28, 2013
Scary Developments
Ugh, I wish I had better news!! Audrey is struggling more and more to breathe. Her chest is retracting and she is coughing a ton. Heading to get a chest x ray and having terrible deja vu. Last summer her esophagus leaked fluid that collected around the outside of the lungs, and she needed a chest tube drain, which punctured the lung because it wasn't in the normal place due to her previous surgeries, and no one knew it had until she had collected 60ccs of air around her heart and needed a second chest tube to get that cleared.... still scared of the stent eroding the esophagus, just, digging deep for courage tonight.
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