Tough day but ended on a sweet happy note! Audrey's line infiltrated (corroded the vein) and had to be replaced, a minor surgery but turned out all right, and her liver function is not looking good, we thought it was the TPN but the surgeon does not, and wants us to talk to a specialist... here we go again. But she is so smiley and happy and just brightens everyone's day!!
I am so sorry that my updates have been such downers lately! What a roller coaster it has been! But she is still just hangin' out, smilin' away... and the days tick on, and I just want to get my family together!! :) It's like that last stretch of the marathon... we can do it.
Other good things: she continues to wean very well off her painkillers, and although we are still on continuous feeds she is tolerating the VERY slow increase of milk feeds into her belly, one milliliter added per day (so it will be another twenty days before she is at full feeds if she tolerates it or in other words does not aspirate again, and then we will begin very slowly to try compressing again, watching all the time for reflux, aspiration, and blood sugar) and this also means the TPN is very slowly but surely coming down.
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