FINALLY Yvonne (our primary nurse) was at our bedside again; after two weeks without her expertise it was like the end of a drought. Did not go up in the morning but planning a visit for this afternoon, and over the phone we were able to get things rolling for a meeting with the endocrinologist for Friday.
The hospital just called, and shared some welcome news. The endocrinologist (a different one who prescribed the diazoxide) believes Audrey will grow out of her blood sugar issues, and does not believe it is caused by a tumor. Meeting with her on Friday to talk directly after tooooo many middle messengers.
Hope is cautiously rekindled. She said that even at her lowest measured levels, Audrey was higher than most of the kiddos with true hyperinsulinism, and that she believes the problem is a temporary one, directly resulting from her history. I won't trust this completely until we get more information, but... yeah. The sunlight just changed color a bit.
5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
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