5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Saturday, August 27, 2011
Saturday, August 27
No NJ for now, she might be big enough for a GJ, but the surgeon wants to wait and just gradually increase her milk drip to give her stomach time to recover. Haven't connected directly with him so not sure he knows about the paralyzed vocal chord; I am so scared that she can't protect her own airway, and sad that we can't feed her by mouth. But happy to learn the paralyzed vocal chord is on the opposite side from the surgery which means she has a greater chance of full recovery once the swelling in that area subsides.
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