She is officially off oxygen as of yesterday, and we got to celebrate her four month birthday with a wagon ride, only out in the halls of the NICU, but it was a huge success, and paved the way for what we really hope for, the great outdoors! Well, at least the hospital garden. :) And hopefully very soon... her first meeting with big baby brother!
5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Flutter By
Wednesday, August 31, 2011
Wednesday, August 31 -- First Wagon Ride Since Surgery
Soooo many changes and thoughts in the past few days, but in a nutshell, in just a few short days we've gone from fearing for her life to hoping toward home in about four weeks! Liver study looked cautiously good, still waiting for some results but we are hoping that it will resolve with the end of TPN. She continues to handle the slllooooow increases to her milk, and though she may come home with a continuous feed, key words are she may "come home". Soon.
She is officially off oxygen as of yesterday, and we got to celebrate her four month birthday with a wagon ride, only out in the halls of the NICU, but it was a huge success, and paved the way for what we really hope for, the great outdoors! Well, at least the hospital garden. :) And hopefully very soon... her first meeting with big baby brother!
She is officially off oxygen as of yesterday, and we got to celebrate her four month birthday with a wagon ride, only out in the halls of the NICU, but it was a huge success, and paved the way for what we really hope for, the great outdoors! Well, at least the hospital garden. :) And hopefully very soon... her first meeting with big baby brother!
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I'll say it again: She is SOOOOO Cute!!!!
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