Suppressing the urge to throw something. Audrey is needing a new solution for getting milk through her system; because of severe reflux she is not handling even slow drips of milk through her G tube and they had to go back to full TPN. It is looking like another (minor) surgery and another (probably months of a) tube down her nose.
On top of that my poor 19-month-old had an ER trip this week for a scary food reaction that cause the whites of his eyes to swell, and still has a (probably unrelated) fever..... and, Audrey's little iPod player went missing this week. We also had to make a big payment on an easement settlement to some neighbors at our rental farm, it had been weeks and they hadn't yet cashed the check, making me afraid that it had been lost and fearing what might happen if the check was late. Thank goodness my mommy and dad are here. It was definitely a mom-hug kind of evening.
5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
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