Today was full of little things that meant a lot: Ditched the chest tube, made the beds, wrote Valentine cards, consulted with doctors and learned they're planning the esophagram Tuesday, walked all the way out of the hospital to the mailbox and convenience store, washed a week worth of laundry (one load), did a random act of kindness, Skyped with home, had an enormously healing chat with Susan the social worker, was delighted to run into and be given a sticker by little Twisha Makwana, and spent hours upon hours with cartoons and snuggles holding my little girl for the first time since surgery, as she smiled and giggled softly, sometimes sweating and trembling with morphine withdrawals, often cuddling closer into me. I'm dropping into exhausted sleep feeling full of joy and purpose and gratitude tonight.
5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Flutter By
Wednesday, February 10, 2016
Little Things
Today was full of little things that meant a lot: Ditched the chest tube, made the beds, wrote Valentine cards, consulted with doctors and learned they're planning the esophagram Tuesday, walked all the way out of the hospital to the mailbox and convenience store, washed a week worth of laundry (one load), did a random act of kindness, Skyped with home, had an enormously healing chat with Susan the social worker, was delighted to run into and be given a sticker by little Twisha Makwana, and spent hours upon hours with cartoons and snuggles holding my little girl for the first time since surgery, as she smiled and giggled softly, sometimes sweating and trembling with morphine withdrawals, often cuddling closer into me. I'm dropping into exhausted sleep feeling full of joy and purpose and gratitude tonight.
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