One of her rare smiles. She looks so cute in the fun hospital gowns from Amy and Aliyah. Thank you so much! Love you guys! |
5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Flutter By
Friday, February 12, 2016
February 12, 2016
Well, with the morphine and Versed done, life got less fun yesterday for my little love. Lots of discomfort, grumpiness and malaise. Tylenol and Zofran are our friends. Haven't been able to get her interested in doing anything except tv, not even opening our first mail from home! (Right after this nap.) She won't stand or sit unassisted, not many smiles. But on the plus side, her voice is back! It's a huge help to have her articulate what's going on. Really looking forward to our first visitors this afternoon, when Anna and Tim are planning to drive up from SE Mass, and cheering on our "runner" Valerie Mccormick who's doing her first half marathon today for Audrey in Seattle! Thanks for your sweet package Mom and Justin, I can't wait to open it!
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment