Audrey threw 3 or 4 more purple parties with guests and balloons overnight, so I stayed close this morning instead of leaving the hospital for church as planned. Her panic spells are tied to her periodic suctionings, so the team has developed an effective system of giving extra calming meds just prior to a suction and "bagging"--manual breathing support with a special balloon--through the procedure. She's on some calming meds all the time right now and they are helping a lot, but basically she just wants that vent out, yet isn't quite ready physically. They're thinking Monday or Tuesday right now for extubation. She also spiked a fever of 101 in the night and there was talk of adding back antibiotics, but the fever came right down with Tylenol and hasn't returned, so they're thinking it was inflammation instead of infection. I'm so impressed with her nurses. Cindy, her night nurse, was so incredibly sweet and gentle with her! She spoke so kindly to her whenever Audrey awoke and would even ask her questions, and I was so happy to see Audrey answer with head shakes and nods. She's still pretty out of it, but every now and then I get to see her eyes, and love that. Thankful for fantastic nurses and everyone else taking great care of her.
5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Flutter By
Sunday, February 7, 2016
Party Girl
Audrey threw 3 or 4 more purple parties with guests and balloons overnight, so I stayed close this morning instead of leaving the hospital for church as planned. Her panic spells are tied to her periodic suctionings, so the team has developed an effective system of giving extra calming meds just prior to a suction and "bagging"--manual breathing support with a special balloon--through the procedure. She's on some calming meds all the time right now and they are helping a lot, but basically she just wants that vent out, yet isn't quite ready physically. They're thinking Monday or Tuesday right now for extubation. She also spiked a fever of 101 in the night and there was talk of adding back antibiotics, but the fever came right down with Tylenol and hasn't returned, so they're thinking it was inflammation instead of infection. I'm so impressed with her nurses. Cindy, her night nurse, was so incredibly sweet and gentle with her! She spoke so kindly to her whenever Audrey awoke and would even ask her questions, and I was so happy to see Audrey answer with head shakes and nods. She's still pretty out of it, but every now and then I get to see her eyes, and love that. Thankful for fantastic nurses and everyone else taking great care of her.
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