5-year-old Audrey was born with her lungs connected to her stomach and an incomplete esophagus (Long Gap EA/TEF or Esophageal Atresia). After two big surgeries and 142 days in the NICU in Utah, Audrey finally moved home but has since needed much more surgery, now in Boston. Much of her food still comes through a tube directly into her stomach, and she has had many procedures to help her swallow food, but she is thriving today. Thank you for blessing us with your love and prayers.
Flutter By
Sunday, February 7, 2016
The Color Purple
Well, I wish I could say that our first attempt at lifting the paralytic went swimmingly. Instead, after a few moments of taking it all in my sweet and sassy princess opted to express that she was not amused by holding her breath against the pull of the vent, donning an impressive shade of purple and some single digit sats. But hey, she knows how to throw a great spur-of-the-moment party! There were plenty of guests, balloons, and stimulating conversation. As the boluses kicked in, sats rose and she slipped into a comfortable slumber, I reminded her that her favorite color isn't purple, it's pink. It really does look better on her.
A few useless-feeling minutes later I was sitting in the cafeteria trying to convince myself again that food is good, listening to Pandora, and humming along to "Every breath you take, I'll be watching you."
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment